Weekly Update #27

Things have been busy here!

I did go see a pulmonologist to follow up on my shortness of breath. He couldn’t find any issues with my lungs and suspects that when I get dehydrated my electrolytes get off and a small arrhythmia causes the breathing problems. I have an appointment with my cardiologist for the end of April to follow up on that possibility.

Last chemo was a lot. All I did that week was sleep and hydrate. It paid off, though, and I was able to take my daughter out of town for Spring Break. I was so happy to feel well enough to manage a solo trip together. We visited friends and played with them as well as visiting some great Houston attractions. I brought my rollator out on her maiden voyage and I can see how this mobility aid is going to be life-changing. The experience was so bonding for my girl and me, and it was nice to give my husband some respite.

Unfortunately I did have to spend an evening in the MD Anderson ER. Ever since a muscle seized up in my neck a couple weeks ago my port has been hurting. The pain was intense and long-lasting enough that I called the nurse line and they wanted me to come in to make sure it was in the right place. It is and there’s no reason they could see for the pain, so it’s probably musculoskeletal. Hopefully my neck finishes releasing soon and I can be done with the port pain.

This week is chemo 3 out of 4 before my next big scan. It’s going well so far. We added in a new pre-med, to mitigate aide effects, and I’ve been able to eat and drink more than normal. I’m hopeful I’ll be able to catch up beyond the things that need immediate attention in my coming off weeks 🤞🏻

Weekly Update #26

It has been another busy week!

Last week I was super dehydrated from my treatment and it took a visit for IV fluids to get me back on track. I figured out I was dehydrated because I was short of breath after walking for just a minute. Right after getting the dehydration under control allergies hit, so my breathing problems continued.

I did manage to rally and go to my singing event and I am so glad that I did. Several of my friends surprised me, which meant so much to me. I saw a lot of tears eyes in the audience as I was singing, which I hope means my song really translates my feelings.

I further rallied and taught at a knitting retreat this weekend. It ended up being the perfect place for me to mostly rest, but also enjoy some wonderful company. Many of the same women attend each year and it was a pleasure to catch up with new and old friends.

I was due to get chemo this Monday, but I was still short of breath so instead I went for a scan to get to the bottom of it. Unfortunately the scan didn’t reveal the cause, so I’ll be following up with a pulmonologist as well as my cardiologist to keep an eye on it.

During the knitting retreat the shortness of breath made it hard to get around the hotel, and I realized it was time for my first mobility aid. Today my rollator arrived – it’s a walker with a seat. I don’t need the walker part really, but always being able to have a seat with me will make a huge difference and make some events accessible to me that otherwise I’d have to sit out. I expected to feel sad to reach this milestone, but instead it’s a relief that I have this option. It’s tough to truly appreciate mobility until it’s a struggle, but now I can appreciate anything that will restore some to me.

Today I am finally feeling better. I am looking forward to my SXSW talk this weekend. I’m told that if you visit the Livestrong Facebook page that the event will be live-streaming – this Sunday at 12:30pm CDT. I hope some of you will be able to turn in and hear me tell a bit of my story!