Weekly Update #26

It has been another busy week!

Last week I was super dehydrated from my treatment and it took a visit for IV fluids to get me back on track. I figured out I was dehydrated because I was short of breath after walking for just a minute. Right after getting the dehydration under control allergies hit, so my breathing problems continued.

I did manage to rally and go to my singing event and I am so glad that I did. Several of my friends surprised me, which meant so much to me. I saw a lot of tears eyes in the audience as I was singing, which I hope means my song really translates my feelings.

I further rallied and taught at a knitting retreat this weekend. It ended up being the perfect place for me to mostly rest, but also enjoy some wonderful company. Many of the same women attend each year and it was a pleasure to catch up with new and old friends.

I was due to get chemo this Monday, but I was still short of breath so instead I went for a scan to get to the bottom of it. Unfortunately the scan didn’t reveal the cause, so I’ll be following up with a pulmonologist as well as my cardiologist to keep an eye on it.

During the knitting retreat the shortness of breath made it hard to get around the hotel, and I realized it was time for my first mobility aid. Today my rollator arrived – it’s a walker with a seat. I don’t need the walker part really, but always being able to have a seat with me will make a huge difference and make some events accessible to me that otherwise I’d have to sit out. I expected to feel sad to reach this milestone, but instead it’s a relief that I have this option. It’s tough to truly appreciate mobility until it’s a struggle, but now I can appreciate anything that will restore some to me.

Today I am finally feeling better. I am looking forward to my SXSW talk this weekend. I’m told that if you visit the Livestrong Facebook page that the event will be live-streaming – this Sunday at 12:30pm CDT. I hope some of you will be able to turn in and hear me tell a bit of my story!

One thought on “Weekly Update #26

  1. I’m so grateful I was able to watch this online, Christina! You did such a great job! Your song was so beautiful. ❤ I got a little weepy watching you talk about being seen as a whole person who matters and not just a disease to be treated. Love you, girl. What a fantastic model your new clinic has created–I'm excited for you!

    Like

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