Weekly Update #28

In a lovely change of events, I am having a really great off week right now. We added a new pre-med, as they are called (the not-chemo drugs they give you before chemo to help mitigate the side effects) to my regimen this past time around and it has proven to be so helpful. I was better able to eat and drink last week, and by Monday of this week I felt like my head was above water for the first time in months. The nurse said we’d make it a standard part of my regimen from now on.

Another reason I am having such a great off week is knowing that I get two of them in a row to allow for fun travel. I’m currently in Dallas at a fiber festival, aka a knitting convention. It’s a weekend alone in a hotel where I take knitting classes all day and then rest my brain and relax all evening. Next weekend I am heading to Denver for CancerCon, a convention for young adults with cancer. I haven’t felt like one for a long time, but in the cancer world I am a young adult for being diagnosed before the age of 40. I have never been to a big cancer event before, so I’m not sure how I’ll feel in the moment, but I am hoping it will be a place where I feel seen and can connect with peers.

After that it’s my last chemo before the next scan! As I mentioned last time, I ended up getting a CT at the MD Anderson ER over Spring Break. As I was secretly hoping, they compared that scan to the one from February and found that things are looking stable. That was after just two doses of chemo, so my hopes are really up that at the official scan I’ll hear that things are stable or smaller. If so, my doctors would be able to lower my doses to maintenance levels, which are far easier to handle. If not I’ll move to a new chemo drug I’ve never tried before; I assume it’s harder because there’s a reason they try it after they know my current drug isn’t working.

So, that’s what I’ll be up to over the next month. Hopefully the net will be lots of fun times and good news!

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