It has been an exhausting week so let’s ease into the recap. I wrote a post for the Dell Medical School blog last month, to tell a little bit about my story in honor of Colon Cancer Awareness month.
I was lucky enough to get to attend CancerCon, a young adult cancer convention, last weekend. I didn’t go into the event with any expectations, I just wanted to take from it what I found naturally. The most helpful thing I heard relates to my post from last week, where I was wondering how I could maintain physical activity throughout treatment. I learned that the current recommendation for cancer survivors is to limit days of inactivity. Flipping the expectation from “be active this many days” to “try to minimize the days of inactivity” feels like so much less pressure, and I have in fact gone on two walks during this chemo week.
As expected, CancerCon brought up some feelings. Over and over at the event there was the message that my peers were finding a community that they had been missing, but that wasn’t my experience. I have such a strong community already that support didn’t feel new. And at times I felt left out of the CancerCon festivities – a reality when you’re in treatment and too tired to participate in the evening activities those in remission have energy for. I expect to keep processing the information I came across there, and I have so many amazing programs to follow up on.
This week was my last chemo before my next big scan. My ribs have been hurting a lot so I am nervous that we’ll find more spread there. I’m ready to get a plan for the next couple months and finish the process of transferring care to the Livestrong Cancer Institutes. More news when I have it!