Weekly Update #33

Last week I was so eager to start my new chemo regimen until it snuck up on me and actually happened. It went much better than I expected, thankfully. I made it through without any allergic reaction and the aftermath of this regimen is easier on me than my old one. I was back to being awake a couple days earlier, and getting back two days of energy every two weeks is a big deal.

I have been able to be more active lately and I am enjoying it. My medications make me extra sun-sensitive so my giant sun hat and I are enjoying walks around the neighborhood. Last night my daughter and I met up with friends for an after dinner swim and it was so delightful, I want to do more of that this summer! I can feel the difference in my pain and energy levels when I am able to keep up even light exercise so I am trying to stay motivated to keep it up.

Speaking of my pain, it has been gone since chemo last week. This has happened before, we guess that the steroids I get before chemo also reduce the inflammation that is bugging me. I am still doing PT and I have a meeting with a local pain doctor next week, but I am hopeful that perhaps regular chemo steroids plus activity could keep things in check and I can avoid lots of pain meds or a steroid injection.

The combination of feeling good, having energy, and not being in pain – and still having a week until my next chemo – is very unfamiliar. I feel like I have been just barely keeping up since I started on Folfiri in December. To be able to take a breath, to have energy that I get to choose where to direct, I am finding it confusing. I feel frustrated that I am not getting things done, and also at a loss for what it is I am supposed to be accomplishing. I find goals hard these days – I like to set them and make plans to accomplish them and I don’t know how to amble towards them, accept non-linear progress towards them. I don’t know how much to push myself when all in isn’t an option. I guess I need to spend some time sitting and figuring out what it is I do want to work on this summer.

2 thoughts on “Weekly Update #33

  1. Yeah for no allergy response to new regime. Have been thinking about you this week and hoping it went well.
    Double yeah for the energy and lessening of pain. So pleased you’re having a good week and hope it continues.
    Second Folfiri for me this week, and I can already feel a significant drop in energy levels. Still managing to do everything I want to do, just needing to factor in more fatigue and recovery time, and get used to again, having a couple of significant crash day/s post-treatment. Doesn’t help that we seem to have skipped autumn and gone straight into winter here. Though it’s going to be a lovely weekend, so I hope I can get out and walk the dog a few times (with my huge bucket hat too).
    Hope you continue to stay fairly pain free and energy full so you can continue to enjoy your spring and summer.

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    • Getting out with the dog sounds like the perfect way to recover from Folfiri. I get sweats the first couple days after Irinotecan so I wouldn’t mind cooler weather for it!

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