This past chemo was a rougher one. Many chemotherapy regimens have a cumulative effect and nearly a year on Irinotecan, one of my current drugs, seems to be catching up to me. During the infusion I had more side effects hit and as I described them to my doctor she said it was like I was checking off a list of the common reactions. I have one more dose before my next scan, after that we’ll talk about whether to make any changes – it’s possible to lower my dose or get that drug less frequently.
That said, even though chemo took me out last week, three days later I was able to run 4 miles. I am going to train for the half-marathon distance at the Austin Marathon in February. I don’t like to commit to things that I don’t know I can finish, so it is a stretch for me to announce that I am training, knowing that I may not be able to run the race. I am going to do what is in my power to get me to that starting line, and hope that I am not sidelined by factors beyond my control.
This week I am heading to a small symposium of healthcare systems undergoing transformation. I will be speaking on a panel about my work as a patient advocate and why it is so important for serving your target community. I sometimes feel weird in the run-up to these events when participants are trading bios and most are there due to their multiple degrees and years of work, whereas I am in the room because I got sick and I talk about it. But I have earned my expertise as a patient and really do enjoy sharing why our voices are so important. I’ll share how it went next week!
Christina!! That is so exciting that you’re going to do the Austin Half! I am already cheering you on š
I hope your symposium went well!
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